ME/CFS Society of WA: Canadian ME/CFS guidelines adoption

A new blog to discuss adopting the Canadian ME/CFS in the U.S.

I have created a blog to discuss adopting the Canadian consensus diagnostic and treatment criteria in the United States, along with the name used in that document, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (which can be found in G93.3 in the World Health Organization's codes of diseases, ICD-10).

The blog is here: http://canadaconsensus.ning.com/

(Please forgive the stupid ads; I haven't figured out how to get rid of them yet!)

Eventually (when I figure out how to do it) there will be a petition and a vote. But the decision about the name and its meaning will not have been made in advance by a committee.

I only ask that those who participate be as polite as if they were all sitting in the same room. If not, I will not hesitate to delete a rude post - although I will suggest a more polite rephrasing to the poster.

ALL subjects relating to the name are open, including the combination names that some have preferred - neuro-endocrine-immune disorder, for example.

I was hoping not to have to restart this debate, but there are issues that need to be discussed before the Fair Name petition <http://www.afairname.org/index.cfm> proceeds further. I had myself signed the petition assuming it referred to the Canadian consensus name, which is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. I would not have signed it had I thought "M.E." stood for whatever you wanted it to.

But this is a choice, and not just mine to make. So - go get a name, a password (write the password down in your home phone book!) and ... post away. Have fun, but play nice.

Mary Schweitzer, Ph.D.